Patients and over 20 professionals from across the voluntary, health and social care sectors united last week at an event to improve support for people with dementia and their families in Kensington and Chelsea. The event was held as part of Royal Trinity Hospice’s Community End of Life Dementia service, funded by West London CCG.

During the event, stakeholders including patients, social workers, dementia advisors, community matrons, hospital nurses, GPs and representatives from the CCG took part in group discussions what is going well, where the system is failing and ideas for how to improve the experience for people living with dementia and their families.

The groups identified a need for dementia awareness training for health and social care professionals, greater collaboration between services and more information of people living with dementia and their families on what is available. The groups also welcomed the idea of a dementia advocate who is trained to listen and support people with dementia to be understood.

Jeannie Grant, one of Trinity’s specialist Community Dementia Nurses, said “The highlight of the event was the enthusiasm of the people attending towards improving the lives of people living with dementia. Everyone came away with a greater awareness of what is available, new connections and fresh ideas for improving their own work and the wider system. I would like to thank everyone who came and in particular the person with dementia who offered a real insight into their experience of living with the condition.”

Trinity’s Community End of Life Dementia service offers support to people with dementia living at home or in a care home. Specialist nurses can help identify and manage symptoms like pain, aggression or anxiety and offer information, advice and reassurance to families to support them in their role. Trinity also has a dedicated weekly group for dementia patients and their carers as part of its Macmillan Wellbeing Programme.

To find out more about work with people with dementia, please contact Jeannie Grant [email protected].